Friday, March 21, 2008
Wednesday, March 19, 2008
Cole's new glasses...his little gift from the dentist office yesterday. He did very well for his check-up. His next check-up is in mid June. Just want to keep an eye on his teeth due to the lack of enamel in areas and the overcrowding of teeth.
Happy Brushing, D, C, and C
Sunday, March 16, 2008
Just a quick post.
Not a whole lot to write about. He is doing well in school. Working on sensory issues in occupational therapy, he HATES the swing (vestibular issue), and has oral motor issues. He has really started to love taking baths.
In the next month to month and a half, he will be having a MRI, be seen by his dentist, eye doctor, neurologist, and neurosurgeon. Hopefully things will be quiet after that for a long while.
His IEP will be coming up in May so we will see what kind of special education services he will receive after that. I am currently enrolled in college, taking a course on special education and the legislation so that I can be on top of things for Cole and his special education....want to make sure he gets the right services that he needs.
Pfeiffer Syndrome, never thought that we would be faced with this as far as Chris having it. Any future children we have (if we decide to have any more), they have a 50% chance of having Pfeiffer Syndrome too. No one knows how mild or how severe the form can be in the next baby. Chris has a very mild form and Cole has a mild form. We love Cole and feel very blessed to have him, content with having just one child. The love for Cole is beyond words and beyond explanation.
Until next time, D, C, and C